From Intent to Impact: Evaluating Patient Engagement Within a Rare Disease Pediatric Network – Feb 10, 2026

Session Description

Edwin S.H. Leong Centre for Healthy Children Community Engagement Series

Join Dr. Beth Potter, Professor of Epidemiology and Public Health at the University of Ottawa, and Maureen Smith, co-lead of INFORM RARE’s patient engagement, for a presentation on co-designing evaluations that meet the needs of patient partners (including youth) and network members.

The session will share findings on the impact of patient engagement in research, as well as lessons learned and opportunities for future evaluation work.